19 May 2012

World Autoimmune Arthritis Day Feature Stories

I am posting these feature story posts from WAAD's Facebook site in order to help spread the word.

One of our original WAAD advertisements featured Maddox, diagnosed with Juvenile Arthritis at age 17 months. Today Maddox is 22 months and just took his first steps ON HIS OWN 3 weeks ago!

For these last 8 days leading to World Autoimmune Arthritis Day we will post one Feature Story each day to show what Autoimmune Arthritis is all about. Maddox is our 1st Feature Story!

Please click on this link: http://www.iaamovement.org/uploads/Final.pdf to view the updated story on Maddox.

Make sure to click on the link at the end to watch a 20 second video of him walking!

Each day during our Countdown to World Autoimmune Arthritis Day we will feature another patient story. Feature Story #2; Amie:

Meet Amie, Ankylosing Spondylitis (AS) Patient, diagnosed originally in the 1990’s, when information was not readily available, Amie was lucky to find a doctor to diagnose her, treat her and send her into remission for 17 years. Almost 2 decades later, when the AS resurfaced, because she did not exhibit text book symptoms, and because most doctors she visited did not believe a woman who was HLA-B27 negative could have AS, she was left untreated for years…until she took her health into her own hands and searched for a doctor who would listen. TO VIEW HER STORY, PLEASE CLICK ON THIS LINK:

Our Countdown to WAAD brings us to Feature Story #3, Stephanie:

As a child Stephanie showed signs of Juvenile Arthritis, but it was not recognized by her doctors. Autoimmune Arthritis ran in her family so her mother and aunt picked up on the signs. What’s so amazing about this? Stephanie is adopted. She couldn’t have been placed with a more compassionate and understanding family. To read Stephanie's full story, please visit this link:



Meet Gavin World Autoimmune Arthritis Day Feature Story #4:

This little guy has been through so much in his short life, including eye surgery due to Juvenile Arthritis. It's not the same type of arthritis as degenerative, this kind affects organs too. Learn more about Gavin by viewing our World Autoimmune Arthritis Day Feature Story #4: http://www.iaamovement.org/uploads/Meet_Gavin_tw.pdf 

Meet Wendy, World Autoimmune Arthritis Day Feature Story #5:

There were several points in Wendy's journey when a simple inquiry by a well educated primary doctor or podiatrist could have saved her from years of pain and frustration. She had very clear, classic signs of psoriatic arthritis since her teens and early 20's but it took her over a decade to get diagnosed. To read Wendy's full story please visit:



Meet Ronan, World Autoimmune Arthritis Day Feature Story #6

Ronan may just have been an example of ‘being born with Autoimmune Arthritis’. He was seemingly in pain since birth, unable to sleep, constant crying and as a baby he experienced high fevers, sweating and rashes. Blood tests and x-rays “were normal” so not much was done until his joints started visibly swelling and injuries were eventually ruled out. Over 2 ½ years of waiting, the parents finally received a diagnosis of Juvenile Arthritis. To read his full story, click here:

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