5 Challenges. 5 Small Victories.
- Walking is painful.
- I cannot drive (yet)!
- I need quite a bit of help at times, especially during flares, to do simple things like laundry or other housework.
- It takes a lot of planning for me to go anywhere. I have to make sure I take medications, briefs, an extra set of clothes and my wheelchair.
- The exhaustion is terrible in spite of being on Provigil, which does help a great deal. I cannot imagine how bad the exhaustion would be without the Provigil.
5 Small Victories
- I can walk, despite being told by doctors that it was highly unlikely I'd ever walk again. So what if I still use a wheelchair at times when there would be too much walking for me? So what if to walk I have to use forearm crutches or a walker? Who cares? As long as I am doing something I was told I wouldn't be able to do, I don't care how I do it! I limp and lurch along which causes people to stare at times. Oh well. I don't care what strangers think. All I care about is my family, especially my son. He has no problem with me using ANY item I need to use if it means I get to go to his school programs or that we get to go out and do things together as a family. If he doesn't care, why should I care what anyone else thinks?
- I can live at home and not need someone with me 24/7. Another thing that I was told by the doctors was unlikely to ever happen. It was either the hospital or a nursing home for me in their eyes.
- I can safely shower ALONE. Pretty good for someone who, since 2010, had to have help in the shower until recently.
- I can do dishes at times. I can also cook, help with laundry, and mop the floors when I am not in the middle of a flare as I am now. So what if I need a bar stool to cook and do dishes, it means I get to do something I love doing like cooking and makes something I really dislike doing, such as dishes, easier on my body. Who cares if I look silly with a laundry basket strapped around my waist? I can carry the laundry to the washer and bring it back when its done drying. Who cares if I mop sitting in my wheelchair so that I don't chance slipping and falling on the wet floor?
- I recently took 2 steps. Not a big deal to most people, except these were steps I took without my crutches, walker, cane, or holding on to ANYTHING. These were 2 totally unsupported steps. Of course I had my braces on since I can't stand without those.